Constant pain from the hematoma. No liquids or foods. I started food through my I.V. The food for the I.V. was ordered at like 11am I only got it at like 11pm. Stupid hospitals. I haven’t had food since last Tuesday afternoon, it Monday. But I am nauseous so I don’t really mind not eating. The day was pretty okay, pretty quiet. Just slept a lot. Walked around a little. My mom stayed the night again thank goodness I love her so much. She is the reason this is not that bad. She got me a little cute kitten stuffed animal and a stress ball so I can squeeze both when in pain lol. Poor kitten.
One surgeon checked on me like three times looking at the hematoma. Then he finaly said, “you know CAT scans aren’t 100% right all the time, and if it is part of the intestines sticking out because of a popped stitch I can fix it quickly. If it is a hematoma I will just drain it.” So less than 30 minutes later I was in the operation room being cut open again.
When I woke up I felt better than I have ever felt in the hospital yet. It was a hematoma but he drained it. Later the pain rose again, probably after the anesthesia wore off but it is so much better than before.
I slept and my mom made my dad to stay the night to help. Lol he can help and he sort of did. But if I woke up in the night he mostly just made me call the nurse and wait anyway. But he did make me wait for the nurse, I guess that is good. And he snored a lot. Haha oh well. I think I am getting better and I won’t need anyone to stay over soon. I just have trouble getting in and out of my bed…and walking. Lol but I am really good at sitting :D
Tuesday, January 26, 2010
Third day here
Sorry I haven’t written in awhile but the past 2 days have been really awful. (if I hadn’t promised not to curse on the internet to my mom, this would probably have a lot of cursing in this entry). So, I was in intense pain at 5:30ish am and they said they couldn’t give me any more morphine or my PCA (the button that gives me my pain killer, stand for patient controlled analgesia). So they gave me an oral pain killer called dilaudid. NEVER TAKE IT! I got an awful migraine and extremely nauseous. One of my surgeons came in and found out they had taken me off the PCE and yelled at all the intern and people hear and I got it back.
Apparently there was a miscommunication. The other surgeon wants the patients off the pain medicine as soon as possible, but when I saw him he said he didn’t tell them to take it off that early. But his interns and residents who I was complaining too did nothing when I complained. They suck so much. So anyway that was awful. But soon after I got my pain medicine one of my friends should up!! And I was so happy!! She brought me the best things lol a red feather boa, magazines which I didn’t have any of yet, really nice chap stick, a miniature diva character lol, my favorite candies (which I am still waiting to eat!!), red nail polish, and of course my favorite musical of all times (at least the ones that my high school played) a DVD of Joseph and the Amazing Technicolor Dreamcoat. It was just amazing. It really cheered me up :D
My aunt and uncle, who are both doctors, also came around the same time. They brought me some flowers. Actually I forgot to say I have a lot of flowers! There is barely enough room to put them all, it is really nice cheers up the room.
After they all left I think I fell asleep for like 2 or 3 hours, and woke up to see another uncle who came to visit. I think it is hard to see people so sick so it was nice that I had a friend and family see me even though it’s tough for them to see.
Anywho, after he left I was still really nauseous from the evil dilaudid, which lead me in to wench and eventually throw up the few liquids I had during the day. The second I threw I was like “oh dang-it, this isn’t good. I feel something bleeding.” Looked down and something was causing a big bump to stick out below my belly button. I curled up in pain and the night was long.
The residents on call looked at it. Then they called in the chief resident, who then called in both surgeons from their homes. (this all took like 3 or 4 hours). I was doped up on so many pain killers and it didn’t really help so I was doped up and couldn’t talk or move on top of being in pain plus nauseous. Not a fun situation. They decided to send me to do a CAT scan to see whether it was a hematoma (a broken blood vessel that causes internal bleeding, which goes away on its own, or a popped stitch which would have undone part of the surgery which would be really bad).
An hour later, around like 10:30pm I finally get to the CAT scan, everything is so slow in hospitals. Turns out it was just a hematoma. I used to get shots in my belly every 8 hours to prevent blood clots. These shots could also be a factor to why I got a hematoma. Now I am not getting them anymore.
That night I was awakened probably every 2 hours. I got an EKG because my heart rate was high (I could have told them that I was in pain, duh my heart rate was going to be elevated). Then I got blood drawn, then vitals, then residents came by. It was frustrating. Now I learned to sleep through all the unimportant things and only wake up for my doctors.
Sunday, January 24, 2010
The day after surgery
Day after surgery sucks more
So that morning I was up at 1am 3am 5am and finally just stayed awake after 7:30am. Doctors came in and spoke to me, as well as fellows and residents, and a nutritionist. They told me that I should try walking or sitting in a chair today. And if I kept liquids down the following day I could have soft food maybe. They were also switching the pain medicine to oral Percocet and something else that was less strong through my I.V. later in the day.
So I attempt standing and walking with the help of three people and oh boy was that hard. I walked about 5 feet then the pain was so much I took more morphine and fell asleep. Pain is all in my abdomen. There are band-aids covering the scars so I have not seen them. There is also a tube coming out of my belly to drain fluid from the surgery, it’s like a reddish bloodish liquid. And I have a catheter because I am unable to walk yet, as soon as I can walk I get it taken out.
So my mom and dad left during lunch time and I was feeling pretty well. The lunch people brought me a piece of bread and this soft fish and I was like I can’t have this and they told me well your doctor said you can. I was confused but too hungry to question and ate my meal ---although slowly and cautiously (turns out I wasn’t suppose to have eaten it yet and caused pain :/
Anywho I decide to walk on my own. This was a bad idea because they stopped the morphine and when I got back to bed I was so weak and tired and could barely press the button to call the nurses to help me. Later that night, I tried to deal with the pain but couldn’t so they gave me some more morphine.
They also filled my body with air during the surgery. It doesn’t hurt it just feels like there is bubble wrap under me lol like by the chest and hips. So that entertained me for awhile.
Tonight I managed to walk another like 10 feet and I sat in a chair. The pain is almost intolerable but you know it could be worse, they aren’t giving me as many pain medications now and even when they did I don’t think it helps. I feel the gas, liquid, and/or food move through my intestines and it kills. The ostomy bag is kind of gross, nothing has really filled it yet because mostly have had only liquid.
Now it is 5:15am. I am so excited because I have some vistors tomorrow! A family member and a friend : )
So that morning I was up at 1am 3am 5am and finally just stayed awake after 7:30am. Doctors came in and spoke to me, as well as fellows and residents, and a nutritionist. They told me that I should try walking or sitting in a chair today. And if I kept liquids down the following day I could have soft food maybe. They were also switching the pain medicine to oral Percocet and something else that was less strong through my I.V. later in the day.
So I attempt standing and walking with the help of three people and oh boy was that hard. I walked about 5 feet then the pain was so much I took more morphine and fell asleep. Pain is all in my abdomen. There are band-aids covering the scars so I have not seen them. There is also a tube coming out of my belly to drain fluid from the surgery, it’s like a reddish bloodish liquid. And I have a catheter because I am unable to walk yet, as soon as I can walk I get it taken out.
So my mom and dad left during lunch time and I was feeling pretty well. The lunch people brought me a piece of bread and this soft fish and I was like I can’t have this and they told me well your doctor said you can. I was confused but too hungry to question and ate my meal ---although slowly and cautiously (turns out I wasn’t suppose to have eaten it yet and caused pain :/
Anywho I decide to walk on my own. This was a bad idea because they stopped the morphine and when I got back to bed I was so weak and tired and could barely press the button to call the nurses to help me. Later that night, I tried to deal with the pain but couldn’t so they gave me some more morphine.
They also filled my body with air during the surgery. It doesn’t hurt it just feels like there is bubble wrap under me lol like by the chest and hips. So that entertained me for awhile.
Tonight I managed to walk another like 10 feet and I sat in a chair. The pain is almost intolerable but you know it could be worse, they aren’t giving me as many pain medications now and even when they did I don’t think it helps. I feel the gas, liquid, and/or food move through my intestines and it kills. The ostomy bag is kind of gross, nothing has really filled it yet because mostly have had only liquid.
Now it is 5:15am. I am so excited because I have some vistors tomorrow! A family member and a friend : )
Day of Surgery
okay so surgery sucks a lot.
day of the surgery. the 22nd, I haven't eaten solid for 3 days so I am ready for surgery so I can eat. got to the hospital at 6am. because i am legally an adult now and my parents couldn't follow me into the place where i had to wait for surgery. It broke my heart to leave them they looked so worried and upset for me.
While I was waiting for surgery, a bunch of people came up to me who were going to be in the surgery room. one guy was a third year medical student and chatted with me. lol he doesn't even want to do surgery he wants to do pathology, and he grew up near my high school's town. So he was nice to chat to. because I had two surgeons, nurses, two anesthesiologist, and a bunch of other people in the room needed, it took awhile to get started. All the doctors was there, but not the anesthesiologist, and I had the medical student like chatting to me while i was just like "PUT ME OUT!" haha
so i am finally "out" by 8:30am and only wake up at 4:15pm-ish. I wake up in so much pain! but it was all good i got to have lots of pain killers. I got something called a pce (I think) and that means I got this button to press which would give me a dose of morphine every 8 minutes. So I liked that. I stau in the recovery room until like 6:30pm and then I get my own private room (I get my own room because I have had c-diff, a bacterial infection three times before.)
That night was difficult. I was pressing that button like every 8 minutes, when I fell asleep I wasn’t pressing it. So I could only sleep in 3 hours intervals, where I would then wake up to pain and press that button for the following hour until I could sleep again. Nurses here are really nice. I also have to breath into this thing to prevent getting pneumonia.
day of the surgery. the 22nd, I haven't eaten solid for 3 days so I am ready for surgery so I can eat. got to the hospital at 6am. because i am legally an adult now and my parents couldn't follow me into the place where i had to wait for surgery. It broke my heart to leave them they looked so worried and upset for me.
While I was waiting for surgery, a bunch of people came up to me who were going to be in the surgery room. one guy was a third year medical student and chatted with me. lol he doesn't even want to do surgery he wants to do pathology, and he grew up near my high school's town. So he was nice to chat to. because I had two surgeons, nurses, two anesthesiologist, and a bunch of other people in the room needed, it took awhile to get started. All the doctors was there, but not the anesthesiologist, and I had the medical student like chatting to me while i was just like "PUT ME OUT!" haha
so i am finally "out" by 8:30am and only wake up at 4:15pm-ish. I wake up in so much pain! but it was all good i got to have lots of pain killers. I got something called a pce (I think) and that means I got this button to press which would give me a dose of morphine every 8 minutes. So I liked that. I stau in the recovery room until like 6:30pm and then I get my own private room (I get my own room because I have had c-diff, a bacterial infection three times before.)
That night was difficult. I was pressing that button like every 8 minutes, when I fell asleep I wasn’t pressing it. So I could only sleep in 3 hours intervals, where I would then wake up to pain and press that button for the following hour until I could sleep again. Nurses here are really nice. I also have to breath into this thing to prevent getting pneumonia.
Thursday, January 21, 2010
I love food!
More things I want to eat (btw i am still not eating--lol thus i am fantasizing about eating)
my roommate's caramel fudge brownies
my aunt's fudge brownies
cookie dough!!
COFFEE!! (and coffee ice cream!)
pies! pecan pie, apple pie
jam---i miss having jam in the morning on my bread
Cakes!
crab cakes
fondue
:D
my roommate's caramel fudge brownies
my aunt's fudge brownies
cookie dough!!
COFFEE!! (and coffee ice cream!)
pies! pecan pie, apple pie
jam---i miss having jam in the morning on my bread
Cakes!
crab cakes
fondue
:D
Wednesday, January 20, 2010
Things I Will Be Able to Eat!
Things that I am excited to eat after the surgery:
Chicken Ceasar Salad wrap
filet mignon with benaise sauce
mushroom soup
chocolate covered strawberries
rasberries and blueberries in vanilla ice cream
a bacon cheese burger with lettuce and tomatoes
a croque-monsieur (couldn't eat ham b4)
onion soup
chocolates
nuts
FRIED food (french fries, chicken fingers)
a chocolate martini
PIZZA (with every topping)
wine
potato chips, sun chips (as well every other kind chips)
pears
apples
watermelon
asparagus
Parmesan chicken
pasta with tomato sauces!! (no more--"um i'm allergic to tomatoes")
scramble eggs with onions
quesadillas with other stuff in it besides just chicken and cheese
buffalo chicken wings
tacos
soda
lemonade
pretty much every vegatable, fruit, and EVERYTHING!!!
Chicken Ceasar Salad wrap
filet mignon with benaise sauce
mushroom soup
chocolate covered strawberries
rasberries and blueberries in vanilla ice cream
a bacon cheese burger with lettuce and tomatoes
a croque-monsieur (couldn't eat ham b4)
onion soup
chocolates
nuts
FRIED food (french fries, chicken fingers)
a chocolate martini
PIZZA (with every topping)
wine
potato chips, sun chips (as well every other kind chips)
pears
apples
watermelon
asparagus
Parmesan chicken
pasta with tomato sauces!! (no more--"um i'm allergic to tomatoes")
scramble eggs with onions
quesadillas with other stuff in it besides just chicken and cheese
buffalo chicken wings
tacos
soda
lemonade
pretty much every vegatable, fruit, and EVERYTHING!!!
Getting ready for surgery
So today is two days before the surgery. I can only have clear liquids :( and no solid foods. I literally dreamed about eating food last night lol. I can't wait until after the surgery and be able to eat whatever I like. For those who don't know what the surgery is, it’s the removal the large intestines because that is where the ulcerative colitis is located. I am going to eat EVERYTHING after the surgery, I am so excited!!!
However, even though the scars won't be that bad, I am a little nervous for them. It will definitely be worth it and I am sure they won't be that bad because the surgery is done laparoscopically. I just took a picture so I can have a before and after picture of my belly haha.
Plus I have a bunch of DVDs all ready for me to watch for when I resting in my bed. This is going to be fun, nice and relaxing. I will get to catch up on all my t.v. shows and movies
However, even though the scars won't be that bad, I am a little nervous for them. It will definitely be worth it and I am sure they won't be that bad because the surgery is done laparoscopically. I just took a picture so I can have a before and after picture of my belly haha.
Plus I have a bunch of DVDs all ready for me to watch for when I resting in my bed. This is going to be fun, nice and relaxing. I will get to catch up on all my t.v. shows and movies
Starting the Blog
So, my name is Kelly. And I have UC and I am going to get surgery which sucks. I am a college student and had to take the second semester off because it, which stinks even more. Therefore people suggested I write a blog about my experience and I am doing just that.
So I was diagnosed 2 years ago even though I started having symptoms 4 years ago. Maybe around my sophomore year of high school. idk its hard to keep track of when I started to feel ill. but when I got diagnosed it was the end of my senior year which was around prom time and graduation (and I unfortunately had to miss all my AP tests haha). It was all good though and I had a lot of fun.
Summer came and I got to rest. I really was looking forward to college even though I was still really ill, and was determined to keep going. It was tough at college. I couldn’t eat most food, couldn’t drink, was often in pain, and every 6 weeks I got this intense medicine, remicade, which would give me flu like symptoms. The admisitration of the medicine would also involve a whole day of traveling to an infusion place and recieveing the medicine, so I would have to miss classes. So after my first sophomore semester I couldn't deny it any longer and I have finally decided to take the next semester off during the winter break to get surgery.
So when I returned to college to get all my stuff, I decided to stay for the whole long weekend. It was Martin Luther King weekend. When I first got there, I was sort of really upset to have to leave, you know because I just thought I was going to be able to be back. I had already chosen my classes, talked about all the things I was going to do with my friends and roommate. So it was upsetting having to leave and return my key and such.
However I think that might have been my best weekend at Georgetown. My friends the following night held a surprise party for me which I was completely clueless about, even though there had been hints implying it. I had been completely oblivious to them. I was so moved by the fact all my friends had shown up to say bye to me. Most of them I had not even spoken to over the winter break, and I hadn’t even told some of my close friends because I was so upset about leaving. I still don’t know how my roommate and my friends planning it got all those people in the room!! I felt bad because I had left my room a mess not knowing about the party. I had bins, clothes and school books out.
That weekend I got the best part of everything. I got to go to dancing parties and parties were we just chilled. Plus that weekend was a lot of my friends' birthday so I got to celebrate it with them. I also just had fun relaxing in my room and haning out. I LOVE ALL MY FRIENDS AND I AM GOING TO MISS THIS SEMESTER SO MUCH!
So I was diagnosed 2 years ago even though I started having symptoms 4 years ago. Maybe around my sophomore year of high school. idk its hard to keep track of when I started to feel ill. but when I got diagnosed it was the end of my senior year which was around prom time and graduation (and I unfortunately had to miss all my AP tests haha). It was all good though and I had a lot of fun.
Summer came and I got to rest. I really was looking forward to college even though I was still really ill, and was determined to keep going. It was tough at college. I couldn’t eat most food, couldn’t drink, was often in pain, and every 6 weeks I got this intense medicine, remicade, which would give me flu like symptoms. The admisitration of the medicine would also involve a whole day of traveling to an infusion place and recieveing the medicine, so I would have to miss classes. So after my first sophomore semester I couldn't deny it any longer and I have finally decided to take the next semester off during the winter break to get surgery.
So when I returned to college to get all my stuff, I decided to stay for the whole long weekend. It was Martin Luther King weekend. When I first got there, I was sort of really upset to have to leave, you know because I just thought I was going to be able to be back. I had already chosen my classes, talked about all the things I was going to do with my friends and roommate. So it was upsetting having to leave and return my key and such.
However I think that might have been my best weekend at Georgetown. My friends the following night held a surprise party for me which I was completely clueless about, even though there had been hints implying it. I had been completely oblivious to them. I was so moved by the fact all my friends had shown up to say bye to me. Most of them I had not even spoken to over the winter break, and I hadn’t even told some of my close friends because I was so upset about leaving. I still don’t know how my roommate and my friends planning it got all those people in the room!! I felt bad because I had left my room a mess not knowing about the party. I had bins, clothes and school books out.
That weekend I got the best part of everything. I got to go to dancing parties and parties were we just chilled. Plus that weekend was a lot of my friends' birthday so I got to celebrate it with them. I also just had fun relaxing in my room and haning out. I LOVE ALL MY FRIENDS AND I AM GOING TO MISS THIS SEMESTER SO MUCH!
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